SCN2A Families, Clinicians, & Donors
Help Us Build the Future of SCN2A Care in Boston
Every child with SCN2A deserves access to specialized, comprehensive care. Your donation will help establish the first dedicated SCN2A Multidisciplinary Center in Boston, bringing together world-class experts to change lives.
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Care That Connects the Dots
A new model of coordinated SCN2A care.
Families living with SCN2A often navigate a long list of specialists, unanswered questions, and disconnected systems. Our multidisciplinary center is designed to bring expert care together — so families receive more coordinated support, clearer guidance, and a care experience built around the whole child.
Hear from families impacted by SCN2A and learn how the MDC will change lives
Why this center matters
SCN2A is complex, and care often is too. Families may need neurology, genetics, behavioral support, therapy guidance, and more — often across separate systems that do not naturally connect. This center was created to help change that. By bringing multidisciplinary expertise together, we can help families access more thoughtful, connected, and informed care in one place.
Expert SCN2A Care
Families benefit from clinicians who understand the complexity of SCN2A-related disorders. By bringing specialized expertise together, care decisions can be informed by deeper knowledge and shared experience.
Coordinated Support
Instead of navigating disconnected systems, families experience a model where providers collaborate and communicate — helping reduce fragmentation and improve the overall care experience.
Family-Centered Guidance
Living with SCN2A affects every part of life. This model recognizes the real challenges families face and supports care decisions that reflect each child and family's unique needs.
Advancing Understanding
Collaboration between clinicians and families helps deepen understanding of SCN2A and inform better care over time.
Understanding SCN2A
When experts work together and learn from families' lived experiences, it strengthens the knowledge base around SCN2A and helps inform better care for the future.
Your Impact
Supporting Multidisciplinary Collaboration
Helping bring clinicians and specialists together to deliver more coordinated care.
Expanding Family Support
Providing families with clearer guidance as they navigate complex medical decisions.
Strengthening SCN2A Knowledge
Supporting the continued growth of expertise and understanding around SCN2A-related disorders.
Building a Better Care Model
Helping establish a stronger foundation for how SCN2A care can be delivered in the future.
Voices from our community
"He was treated as a whole person, not just a single diagnosis within a list of possible comorbidities. That level of understanding made every conversation feel more thoughtful and personalized."
"Having multiple specialists together in one setting provides a much-needed centralized approach to SCN2A care, allowing families to feel more supported and understood."
Help bring coordinated SCN2A care within reach
Families should not have to piece together complex care on their own. Your gift helps support a multidisciplinary model that connects expertise, improves the care experience, and moves us toward a better future for individuals living with SCN2A-related disorders.
Supports care coordination for SCN2A families.
Supports clinician collaboration on complex SCN2A cases.
Supports coordinated multidisciplinary SCN2A care.
Understanding SCN2A
SCN2A-related disorders are rare genetic conditions affecting neurological development, causing seizures, developmental delays, and complex medical needs.
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Complex Condition
SCN2A mutations affect sodium channels in the brain, leading to epilepsy, autism spectrum disorder, and intellectual disabilities requiring specialized care.
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Family Impact
Families navigate multiple specialists, therapies, and treatments, often traveling far from home without coordinated care or support systems.
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Hope Through Care
With the right multidisciplinary approach, children with SCN2A can achieve remarkable progress and improved quality of life for the whole family.
Why a Multidisciplinary Center?
Currently, families must coordinate care across multiple hospitals and specialists. A dedicated MDC brings together neurology, genetics, therapy, and support services under one roof—saving time, reducing stress, and improving outcomes through coordinated, expert care.
The SCN2A Boston
Multidisciplinary Center
Our vision is to create a comprehensive care center in Boston where families can access all services in one place, surrounded by experts who truly understand SCN2A.
Expert Medical Care
Family Support
Cutting-Edge Research
Developmental Therapies
Care Coordination
State-of-the-Art Facility
Your Impact
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45K
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10M+
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850+
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10K
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Make An Impact In
Someone’s Life
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Make An Impact In Someone’s Life
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A Little Help Can
Make A Big Change
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Join Us Now!
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